Slumber Party - Give Back Night - DFW Narcolepsy Friends @ Game Changers Sports and Arcade Grill, Denton [18 January]

Slumber Party - Give Back Night - DFW Narcolepsy Friends


32
18
January
11:00 - 02:00

 Facebook event page
Game Changers Sports and Arcade Grill
122 West Mulberry, Denton, Texas 76201
Come out and support a great cause! There will be art on display, musical and artistic performances, and of course, cheap alcohol ($3 everything)! A part of your purchases will directly go to providing support for people struggling with narcolepsy. The sale contributions to our group go all day long but our specific event will begin in the evening around 6pm. Be on the lookout for more information about artists on display, musical and artistic performances, and set times!

DFW Narcolepsy Friends is a support group consisting of about 300 members in the greater Denton area.
facebook.com/DFWNarcolepsyFriends/

MUSIC
Fun Button
more TBA

ART
Alex Stock
Heather Deaton
Sarah Keyes
Beth Yturri
more TBA

Many of us struggle with maintaining a healthy wake/sleep balance. Whether this is caused by stress, overworking, poor sleep habits, or even physical or mental aliments, this causes many of us to struggle in our daily lives. Sleep deprivation and lack of general sleep health education are all too familiar to many of us. But when do we know the difference of burning the candle form both ends and having a serious medical condition?

What is Narcolepsy?
«Narcolepsy affects around 1 in 2,000 people. Experts estimate that around 135,000 — 200,000 Americans have narcolepsy, but the number may be higher. Most persons with Narcolepsy (PWN) are often mistakenly diagnosed with other conditions, which prolongs the time that it takes to diagnose the illness. Many patients wait decades before receiving a proper diagnosis. The signs and symptoms are so varied, that they are often mistaken for other mental or health issues. There are two types of Narcolepsy. Type 1 is Narcolepsy with Cataplexy. Cataplexy in itself is only something that occurs to Narcoleptics, but can physically manifest itself much like many other chronic illnesses or disorders. The official definition of cataplexy is the sudden loss of muscular function in your body. This often results from triggers of strong emotions, or can be a slow build up from the PWN being overly exhausted. In type 2 Narcolepsy this specificallyaddresses a person's whose sleep wake cycle is severely disrupted. They suffer from extreme exhaustion during the day, and display the same symptoms as those without Cataplexy, like sleep paralysis, hypnotic hallucinations, disrupted emotional and cognitive function and more. 75% of PWN have Type 1.
Narcolepsy is so poorly understood that many persons with narcolepsy — diagnosed or not — encounter discrimination on a regular basis. This may range from well-meaning but misguided advice to flat-out intolerance and disbelief. These thoughts and impressions from our environment can leave us isolated, and cause depression and hopelessness. Most PWN do not know anyone else with narcolepsy, and often are left to wonder if they are abnormal, or defective. This creates self doubt, as well a dozen other negative thoughts and responses.»

Mission Statement:
«Our mission is to spread awareness and educate those who are already diagnosed, and feel helpless in the actual day to day life. „So I have Narcolepsy. What does this mean? What can I do? How should I live? They also experience the 5 Stages of grief continuously throughout their life, grieving things from their past that narcolepsy negatively affected, as well as how it negatively effects and limits their future. There are alot of groups out there that are specifically focused on overall awareness of this illness to the public and medical community. Their focus is on helping undiagnosed, become so, as well as provide funding to continue research on treatments, and maybe someday a cure! Those are important, but our goal is different. We are here for the already diagnosed to seek help in getting to know their illness, and all that comes with that. DFWNF's goal is to service the Dallas-Fort Worth area PWN. We are currently working on apply and receiving 501©3 recognition from the IRS so that we can raise funds for to provide more resources for our population, as well as educate.“

gofundme.com/DFWNarcolepsyFriends
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